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Tasha

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Posts: 7
Reply with quote  #1 
Hello everyone,

I have been experiencing a Chronic UTI for a year now, on and off antibiotics and 'preventative' measures of antibiotics that just about make day-to-day life bearable. I recently had a bad flare where I think the bacteria became resistant to Nitrofurtion. I have been in agony for 3 weeks - it's affecting my relationship, social life, work life and emotional state a LOT.

I came on here and a lot of people recommended D Mannose. The reviews for it were so positive, however I started taking it 2 days ago and have been very very sick since then. I travel to work on a tram and I found myself being sick when I arrived at work. I do have travel sickness but this has been controllable for the last 8-10 years, and certainly it hasn't been that bad since I have been 8 years old. 

Has D Mannose made anyone else sick?

Is there any other recommended alternative treatments that people would suggest?

I would be so so grateful for any advice anyone could offer. Thank you!

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JudeC

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Reply with quote  #2 
D Mannose powder upset my stomach badly - bad diarrhoea.  However, I find I can tolerate the tablets far better.  Also, I have recently seen a homeopath who has diagnosed some tablets - so far, so good - I am not entirely free of UTIs and it's too early to tell whether it's the pills or mere coincidence, but symptoms have disappeared after a couple of days and I have not taken antibiotics for 2 months so fingers crossed.....[smile]
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jude
Tasha

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Posts: 7
Reply with quote  #3 
Thanks for your reply Jude,

I tried the tablets first but they did exactly the same thing. I have massive trapped wind all around my body because of them too - very nasty side effects I'd rather do without when I have my bladder too!

Ohhhh do you have to have a prescription for the tablets you're taking or are they available online/over the counter?

Glad to hear yours is improving [biggrin]

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Moderatorsusan

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Reply with quote  #4 
Before starting any remedy it's probably best to know what bacteria you are dealing with. D Mannose works best on E. coli and gram negative bacteria but won't do anything for gram positive.

It can be harsh on the stomach to start with and people do get loose stools. Some find the tablets better than the powder and it's best to start slowly. Two tablets 3 times a day.

You could try Oil of Oregano or Grapefruit Seed Extract but I'd get a culture done first as these work well for Enterococus infections but less well for E. coli.

If things are working well with the naturopath stick with it. It's all about building up the immune system to fight the infection.
Tasha

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Posts: 7
Reply with quote  #5 
Thanks for your reply Susan.

Unfortunately every urine culture I've had done (about 30 of them by this point) has come back with no results apart from my first one which showed E Coli. That's a problem - I don't even know what I'm fighting but I will try anything that might help even a little!

Thank you for your suggestions. I will try the D Mannose again once my stomache calms down but at a smaller dose. I only started as a lot of recommendations were a spoonful every 2-3 hours so I followed that..

Its working well for the antibiotics but with this change in nitrofurantoin I am so worried that my resistance will build up for each antibiotic until I'm left in agony and without tablets to help me.

Thank you for your time, I really really appreciate you answering my questions [smile]

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Moderatorsusan

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Reply with quote  #6 
Tasha

Please contact the COB office tomorrow and ask for their bacterial biofilm lack. You will find there area couple of specialists treating people for recurrent UTIS which are simply not detected on conventional testing and use their own testing and diagnosis with considerable success.

Keep up what you are doing but do contact the office in the morning for more info.
Tasha

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Posts: 7
Reply with quote  #7 
Hi Susan,

I have already talked to the team about this and the 2 specialists recommended for bacterial biofilm.. Unfortunately I can't afford to see them as they are so far away from me. I know this is very important but I have had to take a loan out to see a private urologist because I saw that as urgent and it will take me a while to pay that off, I can't add any more to my debt :/

Are there any other resources you would recommend?

Thank you

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Moderatorsusan

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Reply with quote  #8 
Sadly not I'm afraid. You are doing all the right things in terms of naturals. We hope shortly that following review the London specialist will be able to reopen his lost to admit NHS patients and you could perhaps. See him them.

The COB Foundation and this forum can continue to offer you the support you need. Sadly until urinary testing is revamped people are struggling with these negative culture results but that's a whole new debate.

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