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meatwell

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Posts: 3
Reply with quote  #1 
Hi, I have read through some older posts about this and thought I would start a new post. I have just had stage one - a week ago and to be honest I am feeling a bit alone with it all.

The stimulation was in a rather odd place - down my left bum cheek but I had that reprogrammed yesterday but I'm still not convinced it is having any affect.

In the meantime I am self catheterising as usual but just can't seem to get myself rid of UTIs at the moment and my bladder just feels completely raw - so I guess I am feeling a bit down about it all.
Moderator_Jen

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Reply with quote  #2 
I have an SNS, I've had the permenant implant for just over 18 months. During this time I've has mine reprogrammed several times. After the last time I went into total retention and had to have a catheter fitted. After a week things calmed down and my voiding started to return to what is considered within normal limits.

Sometimes it can our bodies time to adjust to such a major change. Hopefully with time things will settle down and your body will start to respond to the SNS

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meatwell

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Posts: 3
Reply with quote  #3 
Thanks for your reply Jen. It started to feel as though it was working yesterday, which was nice, although I had to catheterise this morning which I suppose isn't a surprise when I have been switched off all night! Stitches out today - can't wait to get these itchy dressings off!
Moderator_Jen

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Reply with quote  #4 
I found my body reacted more consistently when I had the full unit fitted. Turning off each night really unsettled my body and I'd find that my retention and urgency (desperately feeling like I needed to void but couldn't void) was far worse during the night and first part of the day but after having the unit was switched back on things started to improve during the day until it was time to turn it off again!
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Bladder Health U.K. Forum Message Board Moderator.
Kent Support Group Co-Ordinator
Special interest in supporting those with Interstital Cystitis, Fowlers Syndrome and those who have bladder issues in Kent.

Please support Bladder Health UK by become a Bladder Health UK member  - click here for more details: http://bladderhealthuk.org/membership
meatwell

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Posts: 3
Reply with quote  #5 
Do you really have to turn the permanent unit off every time you drive? Have you managed to set off any alarms?

I am still struggling to get my head around the change since the reprogramming - it is such a a change!
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