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Holiday11

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Reply with quote  #1 
I'm a male 51 I started self catheterisation on January 4th this year I do it 4 times a day it has really changed my life I have always had a weak bladder since a spinal injury when I was age 15 ! I take cranberry capsules 4 aday and teaspoon of manuka honey I also drink plenty of water and half a pint of kefir milk aday which I have read is very good ! However I have had a bladder infection twice so rushed to doctors got 3 days course of antibiotics but I've been told if I drunk pints of water I wouldn't have needed the antibiotics ? I had dark smelly urine with slight blood ! Any advice very much welcome thankyou
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ModeratorKate

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Reply with quote  #2 
Hello Holiday11
Welcome to our Forum and hope you will find much support.

Doh! who on earth told you that drinking pints of water would clear cystitis? If only that were true, we would not have a need for this forum or Bladder Health UK Grr!!

The Dark smelly urine with slight blood , is indicative of infection, and Doc should have sent sample off, to ensure you were being given correct Antibiotic, and certainly for much longer.
Low dose antibiotics will not clear an infection.  They may rid you of the main symptoms but not entirely shift the infection itself, when you come off  will often  flare up again. 
Sadly GPs these days take a hit and hope approach and its usually Trimethoprim or Nitrofurantoin for 3 -5 days.  Ask your GP to print out all the results from the laboratory to show exactly what bugs you have and whether the lab has confirmed the antibiotic susceptabilities and resistances.
If you are a Member BHUK ring(Number top of this page) the BHUK office  and ask for the Cystitis pack. or e. mail them.

Knowing what bacteria you are dealing with could also be helped in eradication, maybe using the following. I would also urge to read through The Category "Cystitis" which may give you some more  advice.

D Mannose
For those suffering with Gram Negative bugs (E coli, Proteus, Klebsiella and Pseudamonas), D Mannose has proved to be helpful in controlling a flare or preventing an attack from worsening or for post coital UTIs. It works by clinging to the fingers of gram negative bugs, preventing them from attaching to the walls of the bladder and urethra. When you urinate, it helps to flush out the bugs from your system. Although it is a sugar,very little gets into the body and most is excreted through the kidneys and urine.
Take a heaped teaspoon in water 4 times a day. Build up to 8 time a day when your bladder flares or every 2 hours including at night during an acute flare for 48 hours. The key is to make sure you have d-mannose in the bladder during the course of the day and night so that the e-coli is continually being flushed through.
You need to take the DM away from any acidic food or drink as it will counteract its effects and you need to keep your urine alkaline. Stools may be loose for a few days when first taking it.
Grapefruit Seed Extract
Grapefruit seed extract (GSE) is truly a broad-spectrum natural antibiotic, capable of killing a wide variety of pathogens. Highly active against protozoa, bacteria, yeast and some viruses, it has been used for quite some time in the treatment of parasitic infections. It is nontoxic, generally hypoallergenic and can be administered for up to several months, which may be required to eliminate stubborn infections.
Please note that it can interfere with certain medications and if you are on blood thinning drugs you should not take anything containing Grapefruit. Check any natural medications with your GP or Pharmacist for contra-indications. People using GSE should be aware that they may have, or may develop an allergy to this preparation. Persons with a known citrus allergy are at higher risk. Should you develop a rash or experience any other symptoms while using it, discontinue use immediately. As with antibiotics you should also take a good probiotic at the same time as the GSE will kill off the good microbiome in the gut so you
need to repopulate.
Grapefruit Seed Extract – take 2 twice a day or 4-6 daily drops in water or 2-4 tablets 3 times a day.
 
Oil of Oregano
Bacteria have one thing in common. They secrete a protein called urease. Scientists don’t completely know the exact mechanism. But, essentially, the urease that these bacteria make allows them to adhere to the epithelial cells. These are the cells lining the urinary tract. Without this ability to adhere to tissue, these bacteria would flush out of the kidneys and bladder every time we urinated. So if it were possible to block the way these bacteria were making urease, they would never be able to maintain an infection. And that’s where
the oil of oregano comes in. Oregano contains active biological substances called phenols. These phenol compounds have the ability to stop bacteria from producing urease. Many other herbs, such as cranberries and uva ursi also contain phenols but studies have shown that oregano has some of the strongest urease-inhibiting phenols.
Oil of Oregano – take 2 twice a day or twice daily under the tongue.
http://www.remedy-bladder-infection.com/oregano.html
 
 I do hope some of this will help, incidentally, should you need to take a sample to your Doc ensure that it is free from AB's or health relieving medication.

Do keep posting we will always listen and maybe some one else will be able to offer you more advice.
Kind Regards
Kate







  
 

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Holiday11

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Reply with quote  #3 
Thank you so much Kate for the reply luckily I'm fine at the moment urine nice and clear
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Holiday11

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Reply with quote  #4 
I do understand how D mannose can very much help when I have a urine infection and as I self cath 4 times a day this puts me at risk from UTIs but a side from my cranberry capsules I take 4 daily is there Anything else I can take daily as a preventive of urine infections ???? Thankyou for your help
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ModeratorKate

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Reply with quote  #5 
Hi Holiday11
Re Prevention D Mannose can be taken:
  • For treatment of UTIs: 1 teaspoon (about 2 grams) for adults, ½ to 1 teaspoon for children, dissolved in a glass of water and repeated every two to three hours. Continue for two to three days after symptoms have disappeared.
  • For preventing recurring infections: Start with the dosages listed above for treatment, then gradually reduce the dose, if possible.

Keep an eye on your Diet and of course cleanliness when administering Catherter etc.
Also make a note of anything different you did in previous 24 hours, when you get a UTI.

If you contact the BHUK Office they may have further advice to help you, and becoming  a Member will give you so much more access to support.

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Holiday11

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Reply with quote  #6 
Yes I wash hands very well with soap and water and gel etc it's a pity D mannose is so expensive
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Holiday11

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Reply with quote  #7 
I'm surprised Holland and Barret don't sell D mannose ?
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ModeratorKate

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Reply with quote  #8 
Try the 'Waterfall link' on this Forum or Amazon, also my local health shop stocks D. Mannose.

Did you ask H & B reason for non stock?

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Holiday11

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Reply with quote  #9 
The sister in urology at my spinal injuries hospital has never heard of D mannose is it relatively new ??
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ModeratorKate

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Reply with quote  #10 
I do not profess to be an expert, but The link to waterfall d mannose has many links with research etc,look at the tabs across the top of page.
here is just one you may like to copy for your nurse.

https://www.sweet-cures.com/uti.htm


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Holiday11

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Reply with quote  #11 
Many thanks Kate will take my iPad at my next appointment I know I'm high risk for UTIs with my self cath before I started I told her about the bladder stimulators on sale online she said they were absalute rubbish that was her words
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Holiday11

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Reply with quote  #12 
The Kefir milk I've been taking 2 weeks now seems to give me an upset stomach and stomach cramps I take a cup first thing in the morning! Is it really good for the bladder ???
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ModeratorKate

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Reply with quote  #13 
Hi Holiday11
Sorry no one has replied, I understand that Kefir may help the Gut, some recommend making with grains.
Personally my thought maybe you have taken too much too soon... as I read somewhere!!!! that start slowly and increase the amount.so maybe try reducing your intake,.
Also if you type 'KEFIR' in the search box above there are some posts referring to Kefir.

Another avenue if you are a Member of BHUK we have  nutritionist that may help.

Regards
Kate

P.S. have you shown the D, mannose article to your Nurse...??

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Holiday11

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Reply with quote  #14 
Thankyou for the reply Kate yes I was taking to much kefir I just have a small cup now first thing in the morning ! I go to my hospital once a year to see the doctor nurse etc so won't be going till later this year am I allowed to name the hospital ?
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ModeratorKate

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Reply with quote  #15 
Hospital name, acceptable but not surgeons, doctors or nurses names.

Pleased you reduced dosage on Kefir, and do consider D Mannose  several members really do find it a help.

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