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KJW

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Posts: 8
Reply with quote  #16 
Hi,

I hope this is the right place to post this.

I have had what I think of as cystitis on and off for years and always managed to get rid of it by drinking water and flushing it through.  However I had a smear test last year and the nurse found I had vaginal dryness (I was 42) so the nurse told me to see the GP, which I did.  The GP did an internal examination which has then set off ongoing cystitis type symptoms for the last 9 months.  Dipstick tests occasionally show white blood cells, and I've had short term antibiotics which don't do anything, and when they send the wee off for a culture, nothing ever shows up.  I don't have burning when I wee, just constant need to wee. I have this at a low level all the time and then it flares up and gets super uncomfortable so even walking is unpleasant.  Ive seen a uro gynaecologist, and had urodynamics and cystoscopy done, which showed my bladder wall was damaged from infection, so he thinks its a sign of chronic cystitis, so I'm now on amitriptyline which has helped a bit (helps me sleep which is the best part!) , and I'm about to start 6 month antibiotic course, I think it's a low dose.  I've also got some vagifem to help with the dryness.  However I thought I might give D Mannose a try before the antibiotics.  Currently I'm just having the usual irritable day, rather than a flare up.  In anyones experience do you think I should start taking the maintenance dose or go for the full on high dose?

Thanks

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Kirsty 
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Reply with quote  #17 

Kirsty

It really depends on symptoms - if you are flaring significantly then a full dosage is advisable namely a teaspoon every two hours including if you wake at night.  Maintain this for 48-72 hours and then drop down to 6-8 teaspoons a day. After that if symptoms settle you can go down to a maintenance dose.

The vagifem will help with the vaginal dryness as you are peri menopausal and sadly frequency and infections can increase during this time.  The ph of the vagina changes too during the change and this allows more bacterial vaginal and bladder infections to develop as this PH usually keeps these microbes in check.  Too dry and the tissues of the bladder and urethra weaken leading to that feeling of needing to pee and also keeping the urethral entrance open allowing more input of bacteria.

KJW

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Posts: 8
Reply with quote  #18 
Thank you, that is really helpful.  I will give the full dose a go and see how I get on.  I've had this for so long I can't actually remember what a normal bladder feels like!
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Kirsty 
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