Hello Susan, Thank you for your kind and considered reply.
There is a private company who will do a longer medical culture if markers of infection are found in your urine on initial culture. So that is ether leukocytes, blood, protein, nitrates or even bacteria and they will then culture the urine for a longer period of time to determine what bacteria have grown and their antibiotic susceptabilities and resistances. BHUK can give you details if you call the office. You liaise directly with them and will receive the results yourself which you can then take to your GP. A number of forum members have used this service.
I’ll be ringing the office later this morning thanks.
I assume you have tried naturals as well such as D Mannose? This is very effective against ecoli infections and a good preventative. This company has an excellent website and very very helpful helpline if you want to give them a call.
I have indeed (and still do) try naturals. I have a large tub of D Mannose along with liquid Potassium Iodide (courtesy of Dr. Jonathan Wright http://tahomaclinic.com/2011/01/iodide/) and I drink high quality Colloidal Silver. This protocol keeps the infection at bay for two weeks at most.
Obviously you must look at lifestyle as well. Is anything precipitating the flare up in symptoms? GIve bacteria an inch and they will take a mile. They thrive on sugar and stress so it may be worth going low sugar for a while. Try a bland diet to calm any inflammation. If female, post menopausal women are very prone to infections due to the lack of oestrogen thinning tissue and leaving the urethra open to bacterial invasion.
I exercise regularly (High Intensity Interval Training with Strength Training). Ifollow a Paleo diet (about 90% to 95% of the time) so sugar and grain products are rare on my plate. Also, I do not eat dairy (with the exception of home made kefir made from raw milk – good for gut bacteria).
I don’t really have a lot of stress as I’m self employed and doing OK on that front. I'm only stressed because of repeat infections.
I’m male so presumably I don’t have any oestrogen issues.
If infections are continuous then your GP should refer you to a urologist for further testing to check for strictures, stones, possible bladder cancer or anatomical issues.
With regards to this – I have a follow up urology appointment at our local Blackpool hospital on 28th Nov so I’ll speak to them and mention my concerns and your suggestions about further tests etc… Also, having checked the resources I've asked my GP to refer me to see Mr A in Wakefield. From what I could gather he would be the best person for me to see. He's got qualifications that cover every symptom I've had plus apparently he's an expert of Bio Films. I might be wrong but I suspect I may have a Bio Film - it seems to fit that e coli pops out once a month.
Finally there are specialists in the UK who are specifically focusing on recurrent and often chronic infections. BHUK can send you an information pack with more details if you give them a call. An excellent book to get hold of is that written by Angela Kilmartin with lots of hints and tips to avoid getting further infections and how to manage infections when symptoms do arise.
I’ll be calling the office later as mentioned earlier because I’d very much like to speak/see someone to end this monthly hell.
I had a quick look on Amazon for the book written by Angela Kilmartin but she’s written several – is there a particular book that you had in mind?