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Tuturocks

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Posts: 6
Reply with quote  #1 
Hey guys I just want a list of uti vaccines where I can get them how I can get them money is no issue I don’t care how much it costs I straight up want the meds because this is just ridiculous how long are we supposed to wait people are straight up dying in the hospital becaus they get some other disease or sickness while getting meds like for real ????
ModeratorKate

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Posts: 1,820
Reply with quote  #2 
Hello Tutrocks
Welcome to our Forum,

If you type 'Vaccine' into the search above, you will find many threads that may assist you,

Whilst we are Uk based, you are more than Welcome to join  BHUK where you will have access to more advice and information in answer to your query

Also I wonder if you have made contact with the following, which may be nearer to you.

Interstitial Cystitis Association (ICA)
100 Park Avenue, Suite 108A
Rockville, MD 20850 USA
Tel: 800-HELP ICA (800-435-7422) 
http://www.ichelp.org
ICAmail@ichelp.org 

Interstitial Cystitis Network ICN (National)
4983 Sonoma Highway, Suite L
Santa Rose, CA 95409, USA
Tel: 1-707-538.9442
http://www.ic-network.com 
jill@ic-network.com

Hope this is of some help, and o please keep posting , as we all understand this dreadful dis-ease.

Kind regards
Kate

 


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Moderatorsusan

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Reply with quote  #3 
You may also be interested in the information here:

Vaccines

A further treatment path is via the use of vaccines used as immuno-stimulating agents.  Four that have been developed are Urovaxom, Uromune, Urvakol and Urostim. Urovaxom, developed and manufactured in Switzerland, contains 18 heat killed inactive strains of e coli and can be taken to treat infections specifically due to e-coli. The links here provide further information and a research study into its effectiveness is found here.  Uromune is composed of heat killed inactive strains of Escherichia coli, Klebsiella pneumoniae, Proteus vulgaris and Enterococcus Faecalis in equal amounts.  A research study carried out by the Spanish developers and manufacturers in Spain is available here alongside a small patient cohort UK research study here. Both are taken sublingually (under the tongue).

Urovakol, developed and manufactured in the Czech Republic and Urostim, developed and manufactured in Bulgaria are the third and fourth standardised vaccines.  These are administered as daily oral tablets containing mixtures of inactivated bacteria. Both formulations contain strains of E. coli, P. mirabilis and E. faecalis, although Urvakol also includes a strain of Pseudomonas aeruginosa, whereas Urostim contains K. pneumoniae. Initial clinical data from animal and patient studies have shown that Urvakol and Urostim have immunostimulating properties. However, clinical trials have yet to be completed showing the efficacy of both of these vaccines.

A detailed research study about the benefits of all these vaccines can be read here.

Vaccines must be taken 2 hours before of after any food, liquid or the brushing of teeth (if using a sublingual version). Vaccines are available on a named patient basis via urologists both privately and via the NHS.  More trials are due to take place.  



Tiredmum

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Posts: 16
Reply with quote  #4 
Hi, I have just started the vaccine this week, if you want info I can message you
Tuturocks

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Posts: 6
Reply with quote  #5 
OMG YES !!! Please I appreciate the quick response I seriously hate thinking about anything remotely related to this F****** thing it has ruined any relationship I’ve been in it ruined traveling concert birthday graduation ... I know there is a cure and there has been for some time now I KNOW this vaccine will work for you I have a weird sense of these things nice to meet you by the way where do you live I’ve never posted on any sites like this so I don’t really know etiquette in regards to asking personal questions I live in Los Angeles UCLA was the place that helped me get my life back Dr JHK I swear by her

Edited as Drs and Consultants cannot be named on the Forum
Tuturocks

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Posts: 6
Reply with quote  #6 
Can I get vaccine by all four is that possible ?
Tiredmum

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Posts: 16
Reply with quote  #7 
Quote:
Originally Posted by Tuturocks
Can I get vaccine by all four is that possible ?
. Hi tutu rocks I’m not sure how to private message here as I don’t think we are allowed to post specific drs details etc from the uk but you can e mail me at lynndoherty@hotmail.co.uk
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This Forum is provided by Bladder Health UK and is intended as a place for Sufferers of Interstitial Cystitis, Bacterial Cystitis and Over Active Bladder, together with their family & friends to gather, online in a positive exchange.

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