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sharonS

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Reply with quote  #16 
BTW I went to see a new private gyno urinary lady...and she said her Spanish colleagues had reported good results on the vaccine...it's from Spain

coboffice

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Reply with quote  #17 

Hello All

I thought I would add some personal feedback to this thread. I saw my urologist in Birmingham last week who indicated that for someone in my category (IC/PBS and RUTIs) stimulating the bladders immune system might exacerbate my IC symptoms if they are being caused by an auto-immune condition.

I am waiting to give Elmiron a try before I have the vaccine as he considers it best to get control over the IC/PBS before trying the vaccine to control the RUTIs.

Susannah x

 


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sharonS

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Reply with quote  #18 
Hi I can see why you would be cautious. Doesn't it effect the whole of one's immune system though?? Not just the bladders...as you administer it as drops under the tongue
coboffice

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Reply with quote  #19 
Hi Sharon

I believe it is only the immune system in the bladder that it stimulates.

Susannah x

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sharonS

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Reply with quote  #20 
Oh....interesting...not sure how it would do that seeing as its given under the tongue. I don't think thats what the lab told me...Ill have to check. Doesn't quite add up
sharonS

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Reply with quote  #21 
Just to let you all know I finished the vaccine in December. Too early for me to say whether its worked but I can tell you all that I personally had no adverse reactions.
coboffice

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Reply with quote  #22 
Hi Sharon

Thanks for keeping us up-dated with your progress. Do let me know how things are for you going forward - it's really useful information.

Susannah x

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Marian70

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Reply with quote  #23 
Hi Sharon, how are you getting along? did you have any improvement?
I am thinking to buy this vaccine.

Have you had improvements? any side effects? have you had new infection?

Love
Marian xxx
sharonS

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Reply with quote  #24 
Marian..replied to the other thread. No side effects. Not had an infection but I don't get them every month so too early to say. I think if you can afford it its well worth considering. Research is good on it
Nia

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Reply with quote  #25 
Quote:
Originally Posted by sharonS
Hi, so I'm on week 1 of the vaccine. I basically got it from a urologist in Reading, you have to pay for IT as it's not yet licensed in the UK. However it already exists in Spain, though looking at the strains if contains it seems slightly different, I'm trying to find out why.

It would be good to hear of other womens' experiences of Uromune.

You have to take it 2 hours before of after any food, liquid or teeth brushing, so I set my alarm and take it at 6.30am

3 months is a long time, but if it works it will be amazing.

I also wonder if they are working on a second generation that would poss be shorter.
Nia

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Reply with quote  #26 
Hi Sharon. Just wondering how are you getting on with the vaccine or has anybody else tried it?
coboffice

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Reply with quote  #27 
No feedback from anyone on the UTI vaccine yet. I would be very interested to hear from anyone who has been treated with the vaccine.

Susannah x

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Anne_44

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Reply with quote  #28 
This is obviously an old thread so was wondering what the latest situation might be with uromune?  I asked Professor S at my local hospital about vaccines in general and he didn't seem to know much about them. However, if this has been so successful in Spain I wonder why it seems to have gone under the radar here in the UK?

If my journey continues along the road of self-cathetarisation then lots of UTIs are likely to follow. I would feel much less anxious if I knew that I could be made immune to UTIs (wouldn't we all)!!
ModeratorKate

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Reply with quote  #29 
Hello Anne

Will see if I can find anything on the Vaccine, as you say no one appears to be commenting.
Re Catheterisation and UTIs, see this Thread as Holiday11 is asking about info re UTI;s
http://cobf.websitetoolbox.com/post/self-catheterisation-8424965?trail=15#11


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coboffice

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Reply with quote  #30 
Hello Anne_44

Are you a Bladder Health UK member? We ran an up-date on the Uromune vaccine in the winter edition of 'Your Bladder Health'

The vaccine is not available on the NHS yet because it is as yet unlicensed. It is available from some urologists on private prescription - I have had a course myself. If you would like any further information, please e-mail me (susannah@bladderhealthuk.org)

Susannah Fraser

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