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Ljp

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Posts: 3
Reply with quote  #1 
Hi, I’m new here, I have OAB onset seemed to coincide with menopause, I struggle with regency and frequency, and often pass very little urine despite having to rush to the loo with fear of peeing myself.

It’s just awful, some days it’s ok, but other days horrendous.
I don’t cinduder myself old, I am 53, I teach dance and dance fitness classes and keep myself fit.
I don’t have stress incontinence, only urge on occasions, but wont rusk not wearing protection as nothing more embarrassing thank leaking 😟

I’ve been taking vesicare 5mg daily fir about three years, and on googling, I found a research report outlining anticholinergics as increasing the risk of dementia and altzeimers by as much as 54% in people who take them daily for three years or more.....I’m so worried, I hope to have a lot of years ahead of me, but how can I cope with OAB with no medication, or risk continuring on vesicare and increase my chances of developing dementia.....please help, does anyone have improvements without using medication? I’m so fed up with this horrible problem, I wish I could have a proper pee, where the flow is long and strong 😟😟
Firefly

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Posts: 42
Reply with quote  #2 
Hi

Maybe if you are worried about the risk of dementia you could switch to Trospium. It doesn't enter the brain so there are no risks with that one or Betmiga is an alternative. I take Trospium and find it does a reasonable job. Have you spoken to a continence nurse about your issues as they are pretty good with urge incontinence.
Ljp

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Posts: 3
Reply with quote  #3 
Thank you for the reply, no I have never been referred to see anyone, just given vesicare on repeat prescription.
It’s almost impossible to get an appointment at my surgery these days, and to ask for a referral to see an incontinence nurse, well I’m just not sure I’d get far..... 😟
GeorgieGirl

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Posts: 35
Reply with quote  #4 
I have had this same worry and discussed it with both my urologist and GP. I take Oxybutynin for the same symptoms, I am 58 years old. There does seem to be an increased risk in people over 65 years old, but as I understand it the study was quite small and both reassured my that they have many patients who take it and have done so for years.
I tried Betmiga and it did not work for me, so I went back to Oxybutynin. I believe that Bladder UK issued some information on the risks when the news coverage on the US research was published about a year ago. That might help you.
Ljp

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Posts: 3
Reply with quote  #5 
Thank you, do you find the oxybutynin really helps you? Vesicare has helped me a bit, but I still have freqyebcy and urgency some days worse than others.
I’m cyrrently trying my own bladder training schedule, it’s really not easy, the most I can hold is 300ml, and mornings are always worse, often getting the urge to go almost every hour/hour abd and a half, afternoons better.
So far this morning I’ve been three times and passed 950ml of urine! .....I feel old before my time with this awful issue, and just want to try and find something that will help.

I have an appointment next week to see a new GP mine is on maternity leave, so I’m anxious, but I’ve only ever been given vesicare, not tried anything else, never been referred to see anyone.

Ive read that Trospium doesn’t go into the brain, so might mention that, but I worry about other possible side effects, I’d rather not take anything at all 😟

GeorgieGirl

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Posts: 35
Reply with quote  #6 
I do know what you mean about feeling old before your time!!
Initially my problem was urgency, I had the feeling like I wanted to go to the toilet all of the time. I do find that Oxybutynin keeps that under control. It took about two months to start working and overall my symptoms are under control. However I work very hard at sticking to an alkaline diet and I have given up caffeine, citrus and other acidic ingredients. I do drink some alcohol but if I do I tend to take Prelief. My urologist told me that my urine should be pale yellow and I stick to that.
I take 2.5mg of Oxybutynin twice a day and have done so for a year. Recently I have felt a b it uncomfortable and have increased the dose to 7.5 mg a day ( a year ago I was put on 10mg a day so I know I was within safe amounts ).
I do think that sometimes our body can get used to a medication and so maybe a 'holiday' from Vesicare would be worth discussing with your GP.
Oxybutynin works for me at the moment and I am trying to enjoy feeling better today and not think too much about the future. I hope one day to be able to switch to Betmiga but I tried it for quite a while and it did not work so well.
GeorgieGirl

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Posts: 35
Reply with quote  #7 
Something else that I would really recommend which is delicious and helps my bladder no end is coconut water. Available in all the various supermarkets.
Hope you feel better soon.
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