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Aranka

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Posts: 8
Reply with quote  #1 
Hi,

After having had recurrent cystitis for years, I finally had a urodynamics test yesterday. Previous ultrasound and cystoscopy came back clear.

After the urodynamics test I was told I didn't void my bladder. This causes the many bladder infections. I will need to self catheterize twice every day. This is very scary to me. The nurses had problems inserting the catheter during the UDS test, I heard them say the opening was very narrow...

But first, before being taught how to do the self catheterization, I will have 4 to 6 weeks time to train my bladder to void. After 4 to 6 weeks I will have an ultrasound scan. If my bladder is empty that day, I won't need to start doing the self catheterization.

For the bladder training I got a leaflet that tells me to void less frequently. In other words I shouldn't try to pee as soon as I have urgency. This is confusing as I thought that urinating as soon a you feel urgency is good in case of cystitis.

I was also told that my bladder is instable and overactive.

I would like to ask how it is to self catheterize. It sounds afwul.
Also I would like to know how others got on with bladder training for voiding problems. Did you see improvement.
Do pelvic exercises help with voiding problems too, I have no incontinence/leaking and these seem to be associated with pelvic/kegel exercises.

Thanks
Christina__21

Registered:
Posts: 10
Reply with quote  #2 
Aranka, you have my full sympathy, as a few years ago I had the same problem. The same fear because when I had a very bad uti, and couldn'nt void at all, 3 hospital staff, a doctor and 2 nurses had failed to get a catheter in and they had to call the consultant out to do it at 2.30am! My diagnosis had been, like yours, urine retention leading to repeat utis.

I struggled with self-catheterisation because I disliked the very idea and could not find the urinary meatus for at least a month! Eventually I found it near the top of the vagina. Geography sorted, I still couldn't get the catheter in until I tried one of the short, rigid catheters (forgotten what they're called) and that considerably eased the insertion problem. Yes, I found it painful as the catheter was pushed past the sphincter and into the bladder, but we all differ physically and in tolerance of pain/discomfort, and many folk who self-catheterise regularly through the day will report little or no discomfort at bladder entry with a catheter of suitable size.

I didn't do pelvic floor exercises, but before self-catheterising I spent a good 5 minutes trying to empty the bladder as follows: void until you feel empty; lean well over to R for one minute, straighten up, and try to void some more; repeat, but leaning to L; repeat, but leaning back.

The good news for me was that after this performance I had less than 200ml residual volume of urine via the catheter, and my urinary nurse told me to stop self-catheterising! This was good news though the real reason for repeat utis in my case is a whole different problem.

Good luck, and do come back to report on progress. I'll be thinking of you.
Christina__21

Registered:
Posts: 10
Reply with quote  #3 
Aranka, you have my full sympathy, as a few years ago I had the same problem. The same fear because when I had a very bad uti, and couldn'nt void at all, 3 hospital staff, a doctor and 2 nurses had failed to get a catheter in and they had to call the consultant out to do it at 2.30am! My diagnosis had been, like yours, urine retention leading to repeat utis.

I struggled with self-catheterisation because I disliked the very idea and could not find the urinary meatus for at least a month! Eventually I found it near the top of the vagina. Geography sorted, I still couldn't get the catheter in until I tried one of the short, rigid catheters (forgotten what they're called) and that considerably eased the insertion problem. Yes, I found it painful as the catheter was pushed past the sphincter and into the bladder, but we all differ physically and in tolerance of pain/discomfort, and many folk who self-catheterise regularly through the day will report little or no discomfort at bladder entry with a catheter of suitable size.

I didn't do pelvic floor exercises, but before self-catheterising I spent a good 5 minutes trying to empty the bladder as follows: void until you feel empty; lean well over to R for one minute, straighten up, and try to void some more; repeat, but leaning to L; repeat, but leaning back.

The good news for me was that after this performance I had less than 200ml residual volume of urine via the catheter, and my urinary nurse told me to stop self-catheterising! This was good news though the real reason for repeat utis in my case is a whole different problem.

Good luck, and do come back to report on progress. I'll be thinking of you.
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