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brooklyn07

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Reply with quote  #1 

I've just come back from an appointment with a consultant who has recommended I try Hiprex - she said itw as available over the counter and no prescription is needed.

However, I have been into 8 pharmacies this afternoon and the ones that had it in stock refused to sell it to me and the ones out of stock refused to order it in without a prescription :-(

I've had a look online and it seems its the same story - prescription only or not available in the UK

Could someone please point me in the right direction to buy some please?

A prescription from the consultant isn't really an option as she is 200 miles away so today was a one off appointment...

Thanks!

heathwhit

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Reply with quote  #2 
You could probably get the perscription from your gp a friend of mine gets it from our local surgery doctors.
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H.M Whitworth
Moderatorsusan

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Reply with quote  #3 
Hiprex should be available over the counter without prescription as it is an antibacterial rather than antibiotic. However I would contact your consultant if this is the issue you have experienced and ask her to send you a prescription so you can take it into a pharmacy for dispensing.

Explain the situation that you are encountering and if needs be ask her to write a covering letter with the prescription explaining that it should be dispensed without prescription. As Heather has suggested, you could take the letter she writes to your GP and ask that a prescription be issued. However hopefully you will receive one in the post. If you cannot wait for this then see your GP and explain the outcome of your appointment.

However for information, to buy it without prescription is around £30 whereas it will be considerably cheaper via prescription.

There have been issues with the availability of Hiprex over the last four months as there was a production issue. There are still reports of patients in treatment with Prof struggling to obtain it and having to ring round multiple pharmacies.

Finally make sure you do the following when on it

You should not take urinary alkalising agents (such as sodium bicarbonate, potassium citrate or sodium citrate) while you are taking this medicine. This is because these types of medicine decrease the acidity of the urine and so make methenamine ineffective at killing the bacteria.

Your urine needs to be as acidic as possible to convert the active ingredient into its effective state in the urine. Some people have found one table a little strong to start with and it has caused burning. You could start with half a tablet and work up from there until you are comfortable with the medication.
brooklyn07

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Reply with quote  #4 

Thanks for the info, I will indeed be making an appointment with the doctor and asking for it on prescription.

Random question, but does anyone happen to know if soluble co-codomol is an alkaliser? Also how about D-mannose? Is there anything else I shouldn't be taking whilst on Hiprex, antibiotics for example?

 

Thanks!

Moderatorsusan

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Reply with quote  #5 
D Mannose can alkaline the urine so take away from when you take Hiprex. There are plenty of Prof ML patients on abs and Hiprex so no issue there. With regard to abs it’s the dosage that matters - high and hard for a period rather than low dose short course which causes bacterial mutation and resistance.

I’d check with your local pharmacist about the co codamo but one ingredient is sodium bicarbonate which can alkaline the urinel. Perhaps like the D Mannose its best to take away from the zhiprex. My only query is the codeine element that can cause constipation but you are probably aware of and deal with this anyway.
tigger11

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Reply with quote  #6 
I take Hiprex and was advised by the Prof to take 2 x vitamin C 1000 mg with each tablet in order to make my urine acidic.  Hope this is helpful
brooklyn07

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Reply with quote  #7 
Thanks for the info - I am still not able to obtain any anywhere! where do you all get yours from??
Moderatorsusan

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Reply with quote  #8 
I have contacted the UK suppliers of this medication and will revert once I receive an update.

There was a production and supply issue in the summer but this was resolved around a month ago but patients are reporting on other forums that they can no longer get hold of Hiprex despite having tried up to 10 pharmacies in their location.
tigger11

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Reply with quote  #9 
I get Hiprex on prescription and buy the vitamin C 1000 mg on line (large size 250 capsules - its much cheaper than from my local chemist)
Moderatorsusan

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Reply with quote  #10 
Issues with supply of Hiprex

I contacted the UK suppliers last night as people are reporting a supply issue both here and on other Forums. Response below:

“Thank you for your email. There is currently stock of Hiprex in the Wholesaler Alliance at their Hinckley, Letchworth and Preston branch. We are expecting further stock to be available week commencing 11.12.2017 and this will then be distributed out to Alliance, Phoenix and AAH Wholesalers for Pharmacies to order from.”

Please feel free to ask pharmacies to call us on 01707 853100 to check for availability.

I hope this helps

Kind regards

Cathy Scott

Customer Service Assistant
Customer Service
Mylan
Building 4, Trident Place
Mosquito Way
Hatfield
Hertfordshire
AL10 9UL

cathy.scott@mylan.co.uk

Direct: 00 44 (0)1707 853238
Fax: 00 44 (0)1707 261803
brooklyn07

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Reply with quote  #11 
thanks for taking the time to chase this, I will print this off and give to my local pharmacy :-)

Thanks!
Loobyloo

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Reply with quote  #12 
HI, I often visit private consultants for myself and family  (son recently seen a private specialist who prescribed very complex, and expensive, regime of pain meds after a serious accident, not bladder related).  I ask the private consultant to write to my GP and explain that I need this medication.  I never have any problems, but usually try to book an appointment with a GP that I usually see, even if I have to wait.  You should not have to seek Hiprex out yourself, it is readily available on prescription and GPs need to prescribe it if they wish to reduce antibiotic resistance.  A few years ago few GPs had heard of it, now this is changing.  
brooklyn07

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Posts: 5
Reply with quote  #13 
Hi all, does anyone have any further updates for this? I now have a prescription but I'm in wales so can only use the prescription in Wales. I have contacted every single pharmacy within a 20 mile radius of me and no-one can get hold of any.

Any idea what I can do next? They won't ring that number given above, they say they will only deal with their own warehouses/suppliers etc and everyone has told them there is a manufacturing problem and no date as to when it will be resolved!

Jaycifer

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Reply with quote  #14 
Quote:
Originally Posted by heathwhit
You could probably get the perscription from your gp a friend of mine gets it from our local surgery doctors.



I have had 4 different antibiotics since July this year , I still feel as if I have a UTI but as the dip tests are negative, my GP will not treat me any more.
She sent me for a Cystoscopy, and it showed a rare condition in the Trigone area, called Cystitis Cystica.

The Urologist again refused to treat me and said Drink 3 Litres of water every day.

My GP will not refer me to the Professor in London, so I have made a private appointment, but takes another 3 months.

Would I benefit so you think from taking Hiprex in the mean time?

I think my GP may agree to this , just to get rid of me!!

Just as a matter of interest, what dose of antibiotic and for how long does the Prof. treat you?

I am so prone to thrush from antibiotics, that I am a bit anxious about long courses.




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Jacqueline de Marigny
Erin

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Posts: 14
Reply with quote  #15 
Hi all,

Has anyone else experienced difficulties recently in obtaining Hiprex?

Told by my pharmacist last week that there's another supply/stock issue and that they aren't getting any Hiprex in for the forseeable. Emailed Prof and he told me to contact http://www.medapharma.co.uk which takes you to a website for a company called 'Mylan'. I've emailed them for info but no response as yet. My pharmacist also told me there'd probably be no point in me contacting other pharmacies near where I live (Glasgow, Scotland) as he said they'd be experiencing the same issues.

Does anyone have any advice as to where I could obtain Hiprex currently? I've already been without it for 4 days. 

Thanks in advance, 
Erin
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