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DawnCOB

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Reply with quote  #1 
MARIGOLD WRITES
 
Hi,

Not sure if I am making a new post or replying.  Forgive me as this is my first attempt to contact the site.      I have been suffering from frequency for some years but it has all come to a head this year.  I am fairly sure I have IC without the pain.

Urine infection in February followed by two further lots of antibiotics but no infection.  Finally got on top of that merry go round.  I was referred to a uro and had a cystoscopy last Monday together with dilation of the urethra as this was very tight.  haven't spoken to the uro since as I was last on his list (under GA).  I took antibs for about three days.  I am still suffering quite a lot and am going on holiday next week.  Not sure how I will cope.    I don't have pain other than discomfort and an urgent need to pee all the time which is making me low and crabby with the family.  I am taking cystopurine and Nytol at night to try to get some sleep.  The uro gave me Ibrophen which I took for a few days but stopped.  Does any one know if these aggrivate or help with post-cystoscopy problems.

I am very interested in all of the comments on the site as I also  have IBS.  I am trying very hard with the restrictive diet but things have been very hard since last week's cystoscopy.  Am thinking of going to the GP to see whether I can be prescribed any of the drugs mentioned on the site.   Has anyone got any advice for me.

Also?  I am due to have a urodnyamics test after my hols. I am very worried about this due to the fact that my urethra was so tight.  I don't want to get on the wrong side of the uro yet as he hasn't actually made the diagnosis.  Sorry this is so long but any help would be appreicated.

DawnCOB

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Reply with quote  #2 
Hi Marigold,

When I had cysto and urethral dilation it did take a little while for frequency to calm.

If you continue to have symptoms as you are post cystoscopy I would go back and see your GP to check that you do not have an infection before you go away on holiday.

Like you, I had a cysto/dilation first and then a few weeks later urodynamics which should tell the Uro all he needs to know.  Sometimes by the time the urodynamics comes round symptoms will hopefully be reduced and the cysto/dilation will have helped..

best wishes

Dawn


marigold

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Reply with quote  #3 
Thanks Dawn, that is really helpful.    I don't think I have an infection and the pain/frequency has calmed down a bit since I put myself back on anit inflammatory tablets.  Not sure whether these are a good idea in the long run though?  Do they do more harm than good?    I have been watching my diet really carefully this week and hope I can keep things under control next week while on holiday.

I am very nervous about the urodynamics test.   I had the dilation because my urethra was tight.  Do you think they will have problems getting the catheta in or will the dilation have helped there?    I am also worried that I might have to take yet more antibiotics afterwards.  What was your experience with the urodynamics?  Thanks again.
tigfox

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Reply with quote  #4 
Marigold,
I have read that we are not supposed to take Ibuprofen as it irritates the bladder, I know I have problems with it.
best wishes,
Tig

DawnCOB

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Reply with quote  #5 

Quote:
Originally Posted by marigold
Thanks Dawn, that is really helpful.    I don't think I have an infection and the pain/frequency has calmed down a bit since I put myself back on anit inflammatory tablets.  Not sure whether these are a good idea in the long run though?  Do they do more harm than good?    I have been watching my diet really carefully this week and hope I can keep things under control next week while on holiday.

I am very nervous about the urodynamics test.   I had the dilation because my urethra was tight.  Do you think they will have problems getting the catheta in or will the dilation have helped there?    I am also worried that I might have to take yet more antibiotics afterwards.  What was your experience with the urodynamics?  Thanks again.

Hi,

Diclofenac seems to be a popular anti inflam.  Further information on suitable medications can be found in IC/PBS Handbook which members receive free from COB for further details send an email to info@cobfoundation.org

I didnt have any issues with getting catheter in during urodynamics , if you are concerned mention this so they use a smaller size cath. Quite often the nurses will know if you need a smaller one.  I have always found urodynamic nurses to very understanding, you can usually call them before to talk about the test if you have any concerns.   I am usually ok during urodynamics and havnet needed anitbiotics afterwards. They will ask you to tell them if you become uncomfortable/feel pain. 

Hope it goes ok and you manage to have a great holiday.

best wishes

Dawn
marigold

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Posts: 3
Reply with quote  #6 

Dawn, thank you so much for your support.  I feel much more confident about going for the urodynamics test now.   I have been looking at the forums on diet and medication and feel much more informed about the possible treatments I might be offered.  At least I will be able to question the Uro with some confidence when I next meet him.

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