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The Cob Foundation > Forums > Overactive Bladder Syndrome > OAB sufferer
 
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turnerl7
Registered: 18/10/09
Posts: 1

    18/10/09 at 12:45 AM
  Reply with quote#1

Hi all, i have just joined and thought i would tell you all a little bit about myself. i'm 34 have 2 children. i have got OAB and have suffered in silence for years one day i was so down i decided to get help. i have tried every drug, pelvic floor exercises etc etc... i have had botox recently which worked but only for a matter of weeks. i would just like to ask anyone out there who also suffers from OAB if they find it hard to have friends and let anyone get close. i'm married but my husband really doesn't understand and often says really hurtful things when i have to make him wait in a shop for the third time in an hour. i also find that i have no close friends (which he also points out to me) but the reason is (which i have never told him) how can i, no one understands this problem and if you go into town shopping then they ask questions and i don't like having to explain about the condition. i would just like to hear from anyone else who feels like this. i feel really lonely and spend lots of time on my own thinking if only i was normal what i could do where i could go. if you feel the same or would just like to tell me a bit about yourselves that would be great. i have never spoken to or met anyone else who has OAB and i feel like i'm the only one so it would be great to hear how it effects others, thanks xx

DawnCOB
Moderator
Registered: 02/12/03
Posts: 2,988

    21/10/09 at 03:13 PM
  Reply with quote#2
Quote:
Originally Posted by turnerl7

Hi all, i have just joined and thought i would tell you all a little bit about myself. i'm 34 have 2 children. i have got OAB and have suffered in silence for years one day i was so down i decided to get help. i have tried every drug, pelvic floor exercises etc etc... i have had botox recently which worked but only for a matter of weeks. i would just like to ask anyone out there who also suffers from OAB if they find it hard to have friends and let anyone get close. i'm married but my husband really doesn't understand and often says really hurtful things when i have to make him wait in a shop for the third time in an hour. i also find that i have no close friends (which he also points out to me) but the reason is (which i have never told him) how can i, no one understands this problem and if you go into town shopping then they ask questions and i don't like having to explain about the condition. i would just like to hear from anyone else who feels like this. i feel really lonely and spend lots of time on my own thinking if only i was normal what i could do where i could go. if you feel the same or would just like to tell me a bit about yourselves that would be great. i have never spoken to or met anyone else who has OAB and i feel like i'm the only one so it would be great to hear how it effects others, thanks xx


Hi,

Welcome to the forums...

Its great you have chosen to get help. Good news is we understand and you do not have to suffer in silence anymore....

It it difficult telling people about a 'bladder' issue , sometimes it can be easier to show them a video or for them to read a leaflet(COB can provide these) explaining the symptoms you are experiencing. Especially if you are in town and keep nipping to the loo , its not always the right place to chat about why...

What are your worse symptoms ? You mention the frequency and trying every drug .... can you list them ? We might be able to suggest something that may help....Have you tried changing your diet ?

Ive had OAB and IC since I was young, Im 40 now , Ive got one daughter and live in Suffolk. 

If you would like to receive further info on COB and OAB please send your name and address to info@cobfoundation.org

best wishes

Dawn

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Hellybobs
Registered: 26/07/07
Posts: 295

    22/10/09 at 07:03 AM
  Reply with quote#3
I have a handful of very close friends all of whom know about my condition, I went to great lenghs to explain it and how it effects me and make me feel.

I found that the people who I thought was my friends soon drifted away when they felt like they had to deal with my problems too...those people most certainly wasn't friends.

I soon learnt who liked/loved me for who I am and accept that I have toilet issue, pain etc.  I have IC as well as OAB.

I have one friend in particular who says to me "come on we're off out, I've planned the route and there are X amount of toilet stops, I know where we can eat, I have lots of water, just bring you and your stuff".

I met my now hubbie (we've been together 5 years) and I told him from the start what was wrong and gave him the option to get out if he wanted, he's still here.  At times it gets him down, mostly because I'm suffering and there is very little he can do but the support, love, hugs (we can't do much else!) and massages he gives is more than enough.

I think some people don't understand and once educated are great and the ones who are educated don't want to understand as it effects their lives too much.

Please don't be put of finding true friendship as there are alot of kind and understanding people who could change your life.


emmasheppard
Registered: 26/06/08
Posts: 29

    29/10/09 at 03:30 PM
  Reply with quote#4
hi mate im 26 and was diognosed with oab and ic three years ago i have no children so its a bit of a mystery as why i have it so young,i also had botox injected in to the bladder last dec and im still having to self cath now up to 17 times aday,as i can pass small amounts of urine but if i dont empty bladder fully it goes in to bad painful spasms,night time frequancy really bad,im awaiting to see a consultant in wakefield to have a sacrel nerve inplant put in ,but stiill aint heard anything been almost 4 mnths ,so im cing a consultant nearer me nxt week to ask weather he would do a bladder augmention on me ,yes i may be young but everything else has failed and im having problems sleeping,so its no joke and having the two somtimes makes me feel really rotten and so isolated if u would like to contact me my email address is fudge.kins@hotmail.co.uk ur welcome 2 get intouch with me ,xx


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Lizhalekirby
Registered: 09/04/09
Posts: 14

    31/10/09 at 06:15 PM
  Reply with quote#5

Hi,I do sympathise with so very much.I have had Ic for about 5yrs.The drugs that have helped me  considerable and can be prescribed by your gp are.Dosulepin 75mg at night.this seems to have a dramatic effect on improving pain and frequency.My urologist uses it on his patients with great success.Tramadol(pain killer) seems to help with the frequency as well as pain.It is best to use the slow release type.Start at 100mg and increase as necessary.I am having great success at the moment with chinese acupuncture.Do not try reflexology as this can make things worse.I would advise against botox and bladder distensions.Hope this helps.xx
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