emmasheppard
Registered: 26/06/08
Posts: 29
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Reply with quote | #1 |
w to see c my uro last wed and he decided to do another cytoscopy and put a cathiter in as im currently waking up every 15 mins threw out night,has anyone had one put in ,how did u get on with bathing ,time of month etc,i was refered from walsall to wakefield for the sacrel nerve implant ,i told them i hadto travel on train and on my own the appointment that they could offer me was ten to 6 ,i asked weather id be able to claime the train fare back as im on low income support ,they said it that i wouldnt because i live out of the area and choose to go that far out,i said that i didnt choose i was referred ,i feel as if im being pinalised ,i have ic and overactive bladder im 26 and live on my own and from next week will have acathiter in place but cant get any help with travel or costs, the docs now put me back on the kettra patches and 10 mg vesicar again to try and stable it ,the other thing is going in for my third cytoscopy nxt tues but its the first time there doing it under local,so really worried any advice would be great xxxx
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DawnCOB
Moderator
Registered: 02/12/03
Posts: 2,976
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Reply with quote | #2 |
Quote: Originally Posted by emmasheppardw to see c my uro last wed and he decided to do another cytoscopy and put a cathiter in as im currently waking up every 15 mins threw out night,has anyone had one put in ,how did u get on with bathing ,time of month etc,i was refered from walsall to wakefield for the sacrel nerve implant ,i told them i hadto travel on train and on my own the appointment that they could offer me was ten to 6 ,i asked weather id be able to claime the train fare back as im on low income support ,they said it that i wouldnt because i live out of the area and choose to go that far out,i said that i didnt choose i was referred ,i feel as if im being pinalised ,i have ic and overactive bladder im 26 and live on my own and from next week will have acathiter in place but cant get any help with travel or costs, the docs now put me back on the kettra patches and 10 mg vesicar again to try and stable it ,the other thing is going in for my third cytoscopy nxt tues but its the first time there doing it under local,so really worried any advice would be great xxxx
Hi Emma,
How are you getting on ? Are you able to get some more sleep now ?
Hope the cysto this week goes well.
You should be able to claim your fares back , make sure you see them in the finance department . If they can help then you should be able to claim back direct from DHSS.
Have you got a number for your local Continence nurse ? They can give you advice on how to manage daily activities... If you dont have a number let me know and I will locate your nearest one for you.
best wishes
Dawn
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EricaSmith
Registered: 18/11/07
Posts: 7
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Reply with quote | #3 |
Hi emma,
I suffer from ic and have done so for many years. I have been so bad at times that i have been taken to hospital and had to have a catheter in for a few day's and i must say it did help.....it helped me to relax and get some well needed shut eye! I did have some rebound effects after the catheter was removed, however this is totally normal! but can effect us ic folk a little more.
As i live in the highlands and my consultant lives 2 hours away she was not keen to ever have me out with hospital without the proper support!
Ie.....District nurses, g.p, Urology nurse. You are really entitled to have this support!
You are also totally entitled to claim back your travel expensies!!! and you are entitled to hospital transport!! You gp should be able to advise you of all this info...if not the hospital should.
I have not read all your posts so i hope this helps.......having a catheter in during the time of the month is fine. You can still wear a pad and pants etc...even loose jogging bottoms if they give you a long enough peice of tubing, which you can ask for! You can easy take a shower aswell.
Do you know how long you will have one in for? You may get a little bit of urethral burning for this i took plenty of bicarb of soda and i even had some with me in the hospital.
Hope this helps...best of luck and i'm thinking of you.
Erica 
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emmasheppard
Registered: 26/06/08
Posts: 29
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Reply with quote | #4 |
hi everyone thankyou for your kind replys,had the indwelling cathiter put in last wed it lasted a week, it kept popping down and the pain was unbearible so i decided to have it removed,the disrick nurse also thought this was a good idea as i suffer from both oab and ic ,said its just irritating the bladder,dnt get me wrong had a couple of good nites sleep but the pain oh no id rather wake every 15 mins instead, hope ur all ok xxx
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