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The COB Foundation > Forums > Interstitial Cystitis/Painful Bladder > International (non UK) IC support group listings
 
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DawnCOB
Moderator
Registered: 02/12/03
Posts: 3,053

    08/08/05 at 08:35 AMReply with quote#1

 Welcome All International board users  COB messageboards are UK based , please be aware that medications + treatments in the UK can differ to treatments available around the world.  For your countries local advice and support please check the following international IC support group list.

Australia

ICSG Australia
PO Box 144,
Richmond, VIC 3121
AUSTRALIA

katyabuc@hotmail.com
Dr Katya Buc Stooke

Interstitial Cystitis Support Group
Mercy Hospital for Women
Clarendon Street,
East Melbourne, 3002 Victoria   Australia
Contact: Christine Murray

Austria
 
 
 
 
 
Argentina
ICA Osterreich e. V.
Irisweg 4
A-4623 Gunskirchen, Austria
Chairman: Elke Hufnagl
http://www.ica-austria.at/index2.html

 
ARACI ( Intersticial Cystitis Asociation in Rosario, Rosario is a city of Argentina)

  "ARACI"(Asociación Rosarina de Afectados de CI)
Domicilio-adress:
DORREGO 3857-DTO.1-2000 ROSARIO
Telèfono: 0341- 4644164- Celular: 0341- 156490984- (lunes a viernes de 10 a 18hs)
Pàgina Web( web site http://www.araci.org.ar

Belgium

Interstitiële Cystitis Patiëntenvereniging België (ICPB)
Contact person: Josee Van de Bergh-De Raa
P. Benoitstraat 49
1800 Vilvoorde
België
Tel: 00-32-(0)2-253 93
info@icpb.be

Bolivia

La Paz IC Support Group – New!
Maria  Eulalia Anker
+591-2-271-2761
eulalia@ceibo.entelnet.bo

Brazil

Interstitial Cystitis Patient Support North East Brazil
Contact person: Ariel Scafuri, MD
Universidade Federal do Ceará
Rua Republica do Libano, 88 apto 200
Fortalexa, Ceará
Brazil 60160-140
tel: 55-8524239-99970367
ascafuri@uol.com.br

Canada

Association de la Cystite Interstitielle du Québec
President: Françoise Robert
14 Grand Coteau
Ste-Julie (Québec)
JOL 2SO Canada
fax: 450-922-6498
http://www.cystiteinterstitielle.org/
(French)

Canadian IC & Overactive Bladder Resource Center
*Web Resource
http://www.canadaic.com
info@canadaic.com
(English)

Czech
Republic

Libor Zamecnik, MD
Urologicka Klinika
VFN a 1. LF UK, Ke Karlovu 6
128 08 Praha 2
Czech Republic
libor.zamecnik@lf1.cuni.cz

Denmark

IC Foreningen
Chairman: Annette Rasmussen
Magleparken 142, st.v
2750 Ballerup
Denmark (*Inactive?)

 
  • IC support group
    President: Nanna Toernquist
    Oester Stationsvej 19
    2960  Rungsted Kyst
    Denmark
    member phone: +45 45763517

nt@dsb.dk

  • Steinunn Joergensen (PBS/IC)
    Project Nurse
    Department of Urology
    Herlev Hospital, University of Copenhagen
    DK-2730 Herlev, Denmark

stjr@herlevhosp.kbhamt.dk

France

Association Française de la Cystite Interstitielle
Chairman: Françoise Watel
82 rue Albert
75013 Paris
France
http://www.orpha.net/associations/AFCI/
ci_france@hotmail.com

Germany

ICA Deutschland
Untere Berg 21
D-53881 Euskirchen
Euskirchen Deutschland
49.163.908.44.93
Chair: Barbara Muendner-Hensen
http://www.ica-ev.de/international/index.html

E-Mail: info@ica-ev.de

India

Interstitial  Cystitis Patient Network - India
Chairman: Indu  Mishra
0265-553-2656.
moonlotus2001@yahoo.com


Indian IC website
http://www.interstitialcystitiscenter.in/

Italy

Associazone Italiana Cistite Interstitiziale
Viale Glorioso 1
000153 Roma  ITALY
Chairman: Loredana Nasta
aici@mclink.it

Japan

IC Tomonoki
Chairman: Masako Katsurada
1459-56, Funaki-Cho Oumihachiman
Shiga 523-0084
Japan
tel/fax: 81-748.338222
perro@mx.biwa.ne.jp

Kenya

New! East Africa IC Support Group Nakuru Chapter
Chairman: James G. Mwangi
+245720391104
jgmwangi2003@yahoo.com

Mexico

Asociación de Enfermedades Uro-Ginecologicas
President: Florentina Ferreyra Lopez
Amatlán No. 37-2,
Col. Condesa,
México, D.F.CP 06140
tel: (52) 55 -54-04-89-16
http://www.asenug.org/
flore@aci-mexico.com

Netherlands

Interstitiële Cystitis Patiëntenvereniging  
Secretariaat ICP
Postbus 4
3980 CA Bunnik
tel: 030-29 62 965
fax: 030-29 48 503
Chairman: Mrs. Lynne van Poelgeest-Pomfret.
http://www.icpatienten.nl/
info@icpatienten.nl

 
 
International Painful Bladder Foundation

Chairman: Jane Meijlink
Burg. Le Fèvre de Montignylaan 73
3055 NA Rotterdam
The Netherlands
Tel/fax : +31-10-4613330

http://www.painful-bladder.org

New Zealand

Interstitial Cystitis/Urology Support Group of New Zealand
Chairman: Dot Milne
P.O. Box 33-264
Christchurch, New Zealand
tel: 64-3-3294005
weedot@xtra.co.nz

Norway

Norge ICPA
Langedalskleiva #4
4790 Lillesand, Norway
Chairman: Julia M. Godøy
http://www.americanbladder.org/norway/
jegodoy@online.no

Norsk Forening for Pasienter med Urologiske Sykdommer
NOFUS
Telefon   : 55 95 35 88 - 55 33 09 30
Telefaks : 55 33 09 31
Chairman: Bernt Kvarstein MD
http://www.nofus.no/
kvarste@online.no

Peru

Fernando Leon MD
Lord Nelson 431,
Miraflores
Lima 18  Peru
ferleon@terra.com

Portugal

Paulo Dinis Oliveira MD
Department of Urology,
Hospital S. Joao
4200 Porto
Portugal
cruzfjmr@med.up.p


Associação de Doentes com Disfunção da Bexiga
 
http://www.addb.pt/
 
 

Poland

IC-Polska
Group leader: Agnieszka Blazewicz
http://groups.yahoo.com/group/IC-polsk
IC-Polska@yahoogroups.com

Spain

ABATYCI
President: Maria del Rosario Fernandez Garcia
Calle Sineu 2 (Adosado C)
07220 Pina, Mallorca
tel: 971-66 53 22
http://usuarios.tripod.es/abatyci/
abatycipina@hotmail.com

Sweden

ISOP – website only
Lennart Branthle
http://home.swipnet.se/isop/ic.htm

UK

COB Foundation

Cystitis and Overactive Bladder Foundation
Kings Court
17 School Road
Birmingham
B28 8JG
 
Tel 0121 702 0820
 


USA

 

Interstitial Cystitis Association (ICA)
100 Park Avenue, Suite 108A
Rockville, MD 20850  USA

http://www.ichelp.org/

E-mail: ICAmail@ichelp.org
Phone: 800-HELP ICA (800-435-7422)
Fax: 301-610-5308

Interstitial Cystitis Network ICN (National)
*Publishing Company dedicated to patient education & Support
4983 Sonoma Highway, Suite L
Santa Rosa, CA 95409, USA
tel: 1-707-538.9442
fax: 1-707-538.9444
http://www.ic-network.com
jill@ic-network.com

 


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